Beyond Batten Disease Foundation - SCOTT COLLIER

Beyond Batten Disease Foundation

DESIGN | DEVELOPMENT | PRINT

Client: Beyond Batten Disease Foundation
Services: Volunteer

BeyondBattenDisease.ORG
Craig and Charlotte Benson established Beyond Batten Disease Foundation in August 2008 after their then five-year-old daughter, Christiane, was diagnosed with juvenile Batten disease. Together with hundreds of families affected by Batten disease, and many more supporters who share their hope and resolve, they are working tirelessly to create a brighter future for Christiane, and all children with Batten disease.

I have worked with Craig for nearly a decade in the private sector. Upon learning the devastating news about his daughter, many people reached out to help the Bensons’ in their quest to find a cure and awareness for Batten Disease. I am only one of hundreds that have given their time to lend their time for their cause. We worked as a team to develop fundraisers such as a Keith Urban concert at Austin City Limits Live. Designed many presentations, document handouts, videos and billboards for awareness and in effort to fund studies to help find a cure for Batten and other orphan diseases.

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